Sunday, April 5, 2009

A long Goodbye- Beginning of the End

Some of you may come here from my Etsy Shop blog, Some may come because they are friends and family, and will use this to keep up with what is going on, and some may come here because they are going through, or have gone through something similar. Whoever you are, welcome.

My aim for this blog is to make a place for me to give information, yes, but mostly as a safe place for me to tell what is going on with me, how I am feeling, coping or not, and to get out some of the things I can't always speak aloud.

For those who don't know, on March 10th, my son David, was been diagnosed as having terminal cancer. At the time I was told that he does not have long to live, perhaps only about 6 months. He is 19.

David is my second oldest son- Jens and he have birthdays two weeks apart. He was four when he came to live with us. He has some disabilities: NF1 (a rare genetic disease that causes tumors to grow on the covering of the nerves anywhere in the body at any time. The disorder affects 1 in 3,000 people.) He also has Fetal Alcohol Syndrome (due to his birthmom's substance abuse. He has an IQ of about 40), and some behavior disorders.

He lived with us until his behaviors and size made it impossible for him to be taken care of at home. He lives in a residential facility in the suburbs of Chicago. We visit him on the weekends, and he calls many times during the week.


  1. *hugs*

    I am so terribly sorry you are going through this. I lost my daughter in 2002 to cancer.

    I'm here if you need someone to talk to. You can email me at HeathensHearth at gmail dot com if you ever need someone to talk to.

    much love and empathy


  2. Ant B: I'm so sorry that you're going through this - very sad times. I hope you and your family have many special moments with your son - and that his pain will be well controlled.

    Sending you some great big hugs,

  3. Ant, thanks so much for posting. So many people are thinking of you everyday.

  4. Ant, we love you so much. We think of you and pray for your whole family daily. I hope some of that love is felt on your dark days.

  5. i wanted to let you know that i think of you so often and that you are regularly in my prayers and thoughts. i can't imagine the pain of what you are experiencing; i hope that this blog proves to be a helpful/ healthy place for you to process some of it. bug hugs to you my friend.

  6. Ant, I am so very sorry you and your family are having to deal with this. You will all be in my thoughts and prayers.

  7. I found you by way of Mrs. B, and just stopped by to wish you strength in this difficult situation

  8. Oh Ant, I'm so very sorry. Wishing you and your entire family strength and peace as you go through this together.