Some of you may come here from my Etsy Shop blog, firstname.lastname@example.org. Some may come because they are friends and family, and will use this to keep up with what is going on, and some may come here because they are going through, or have gone through something similar. Whoever you are, welcome.
My aim for this blog is to make a place for me to give information, yes, but mostly as a safe place for me to tell what is going on with me, how I am feeling, coping or not, and to get out some of the things I can't always speak aloud.
For those who don't know, on March 10th, my son David, was been diagnosed as having terminal cancer. At the time I was told that he does not have long to live, perhaps only about 6 months. He is 19.
David is my second oldest son- Jens and he have birthdays two weeks apart. He was four when he came to live with us. He has some disabilities: NF1 (a rare genetic disease that causes tumors to grow on the covering of the nerves anywhere in the body at any time. The disorder affects 1 in 3,000 people.) He also has Fetal Alcohol Syndrome (due to his birthmom's substance abuse. He has an IQ of about 40), and some behavior disorders.
He lived with us until his behaviors and size made it impossible for him to be taken care of at home. He lives in a residential facility in the suburbs of Chicago. We visit him on the weekends, and he calls many times during the week.